The Ketamine Infusion Vids Have Landed (Flown?)

Dear Audy,

Well hello, I must apologise for not writing to you in so long…there was the great laptop crash of 09 and a ride on the emotional rollercoaster of being doctor dumped (more on that later).

The online support of people who understand what I’m going through has been extremely valuable for me and helped keep me sane. The number of RSDers tweeting is rising all the time. It’s like being able to scream out into the wilderness and have people who understand scream back. @CRPS_RSD is a profile set up by Dr_SG to broadcast DM messages to followers, follow for messages from RSDers and send a direct message to CRPS_RSD to automatically share with the group.

Hugh Jackman has offered 100k to a charity that can best put forth their cause in a tweet (140 characters). Participate by tweeting @RealHughJackman – the way I see it, any chance to raise awareness is worth trying, especially when it doesn’t even involve getting up! I have often thought that dagger in the arms feeling must be kind of like what Wolverine goes through when his claws come out…it certainly feels like how that looks!

Me & My RSD/CRPS Friends is the facebook group I am hosting as a way to provide communication to anyone who is interested in hearing from me about RSD/CRPS related things. Please feel free to post questions & start discussions, the ones already happening have been helpful and informative…as well as providing a nice way to know you are not alone.

The following videos were recorded almost a month ago. It was a difficult story to tell, involving a lot of ‘ums’ and blank pauses that needed editing out! I realise you’re thinking, ‘Sheesh, Caf, how do u expect me to find time to watch all this?’. I am posting this all at once for those of you who are suffering and wanting more info about what a ketamine infusion can involve, I don’t think youtube is going anywhere so please watch at your own pace…and remember this is just my personal story, from my perspective as the patient and is not a representation of anyone else’s experiences or an indication of how a ketamine infusion would affect you.

My Reflex Sympathetic Dystrophy (RSD) Story part 7: The Ketamine infusion
(pt 1 of 3)



My Reflex Sympathetic Dystrophy (RSD) Story part 7: The Ketamine infusion
(pt 2 of 3)



My Reflex Sympathetic Dystrophy (RSD) Story part 7: The Ketamine infusion
(pt 3 of 3)



Phew! It’s relieving to finally have this part of the video story completed, coming next….what happened at the follow up appointment with the pain specialist.

Love & A Long, Linkful Post,

Caf

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  • 4 thoughts on “The Ketamine Infusion Vids Have Landed (Flown?)

    1. Nancye Davis

      First of all, thank you for documenting your experience with Ketamine. I don’t know how you were able to do it given what you were going through. I SO wanted this to work for you! For your pain to either go away completely, or at least for it to be bearable.(Is there such a thing?) Do your doctor(s) know why you didn’t have any lasting success with the Ketamine? What have (if you know) other people who have tried this responses been? Have their been any success stories? I know there have been some progress made with the coma patient, but what about a treatment similar to what you had? Can you try it again to see if you get a betterresponse?

    2. Nancye Davis

      I guess I talk too much–I got cut off. My question is: can you try this again to see if you get a better response? Not sure if you’d even want to! I just have a million questions! I just wish your response had been better. I know the pain of RSD first hand and I wouldn’t wish it on ANYONE!! Thanks again for sharing your experience with us. I hope you flare calms down.

      Love ya!
      Nancye

    3. Paula Sheerin

      Hello, I just sort of wandered in here today from utube & I really like your website. I’m especially interested in the way you are learning to control your thoughts. I’ve been trying to do that too.
      I lived in Dallas, Texas when I got the RSD in 1998, but moved back to Ireland in 2002. Paula

      1. Hayley Cafarella Post author

        Hi Paula! Thanks for commenting, it’s always great to connect with new people who understand what it is like to live with this monster. Taking control of my mind has been a huge part of learning to cope with this. One of the most enlightening books that I read was The Joy Of Living It’s taken a long time to incorporate the wisdom from that into every day life, but I have found that it becomes more easily with time. I like to read a lot as I figure I just never know when somebody’s words or experiences will “click” with me. Wishing you much luck in your journey, please feel free to write to me anytime :)

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