My Reflex Sympathetic Dystrophy (RSD) Story part 6: It Hits The Hands

Dear Audy,

Well, here it is…I’m finally catching up on telling you my story. You can probably tell from the lighting and TV strobe effects that this was recorded late in the day…and also that I should have turned the TV off, not just muted it…but oh wells…the late recording also means my brain is slightly less focused and more prone to getting amused at itself….oh wells…



Yeah, um, sorry about the sound distortion…someone should buy me a better microphone…or a quieter voice. Either would probably work. If you go the voice, please also get one that sings prettily…

What I completely forget to mention in this vid is the day a needle made things worse. It was December (hopefully you haven’t cast your mind back to the present yet) and I needed a blood test. You know, thinking back, I had a bad feeling walking into that room, it was holiday times and the regular staff were off holidaying…so I got the nurses that didn’t make holiday worthy…not a good sign (apologies, nurses, but I’ve been hurt too many times!). Anyhoo, I have crappy veins as it is, they like to hide…no dreams of junkiedom for me. On that day, they were sneakier than ever. She put the needle in my left arm and missed, then she left it in there and just kinda poked around a little (mind out of the gutter Audy….no, you’re a hypocrite…no YOU), then, all of a sudden, it was like she PUT A DAGGER THROUGH MY ARM. Maybe even a poisoned dagger. I kind of slumped in the chair in a highly pained, faint, about to pass out kind of way. The nurses moved me across to the bench to lay down for a while and gave me some water. After about 15 minutes I was feeling better, however there was still a sharp, burning pain going up and down my arm, from just above my elbow to the end of my fingers.

Ever since then, I have had much worse pain in that hand than in the right one. It’s much more prone to stiffening up and making itself useless. I am also now kinda scared of needles…it turns out they can do a lot of damage when you have RSD/CRPS. If you do, I would warn you to be careful and make sure whoever is sticking you is experienced and high calibre…something as small as a blood test can spread and worsen this awful beast.

I’ll be back soon to talk about the ketamine infusion…possibly in my Happy Joy Koala T-Shirt Of Love as it can really brighten things up….unfortunately the infusion wasn’t as ‘all good’ as I would have hoped…doh!

Love & Accidental Jokes,

Caf

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  • 3 thoughts on “My Reflex Sympathetic Dystrophy (RSD) Story part 6: It Hits The Hands

    1. Maria (Tough Cookie)

      Hi, love! Just popping in to say hello. I’m in the midst of grad school midterms and all I can say is that they don’t mix well with advanced RSD… I may be out of my league :-( but summer is almost here.

      I get IVs twice a week and the needles and blood pressure cuff always set me off. When people are afraid of needles I always think, gee, try having RSD.. then you will know what it’s like to really be scared of needles. I’m thinking of you sweet girl. Keep the faith!

    2. Kate

      Hi there, I know this is an old post but I couldn’t NOT comment about your blood test experience. What you experienced happened exactly to me, and is actually how my RSD started. The blood test was done so badly the stupid woman put the needle into my median nerve, which caused the nerve damage which began my RSD. I hope you aren’t having long lasting trouble from your blood test and I’m sorry to hear you’ve gone through this too.
      Take care, Kate

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