Well, it has taken over a week and I finally have my feedback for the hospital completed. I will let you know a little more about that after they have had a chance to respond.
This is a sketch I drew when I was in hospital. It was just an image that kind of appeared into my head and then hounded me until I got out a pencil and scribbled it down…which was a lot of effort as finger co-ordination was not something that came easily whilst on the ketamine. Then I had to stare at it for a while and try to figure out what it meant and why I drew it. I think it has a poem…or at least a lyrical title that will accompany it when I turn it into a painting. I’m really not sure. Something about letting things tangle but still looking ahead…or kind of ahead and behind at the same time…but not letting go of the yarn…and yeah, I’m obviously still figuring this one out.
That letter was taking up all of my brain power…I have been in a lot of pain and on a lot of medication which does not equate to much brain power in the brain power pool. I think this is why Twitter is so perfect for me right now…such uncomplicated thought and yet still a means of communication…fabulous. If you have looked at Twitter and wondered what on earth the point was, I don’t blame you, I thought the same thing at first. But now I know a couple of important things. The first is that a lot of amusing people Twitter, so you can read their updates and just have a little giggle. The second is that it’s best used through an application like twhirl, which turns Tweeting into something like instant messaging with the whole world…with no obligation to reply and no obligation to keep following people who get boring. It’s also excellent for any time you have an amusing or important thought and have the urge to share that thought with the whole world…without delay. Twitter lets you do that.
Something has been bothering me and I think I need to fix it before I can tell the story of my ketamine infusion properly…and that thing is that I haven’t finished recording my RSD story. I have been recording them kind of ‘major point’ by ‘major point’, mostly meaning the different instances when it spread. I have not yet told you about when it spread to my hands. Once I’ve done that, I’ll feel like I’m making a lot more sense when explaining how the infusion effected me. Getting this done is my mission over the next few days…can’t get too precise about deadlines when you have RSD, it likes to make a mockery of them!
The next step in my RSD/CRPS journey is to get some more investigation done on my ankle, where the original pain started. I think there’s something there that is driving the RSD and constantly triggering it, so I doubt there’s much chance of me beating this monster while that’s still there! Sigh…more doctors…more waiting….at least I have you, Audy, you make lovely company on the long, repetitive and painful days.
Love & Unfortunate Flaring,